Shriners Hospitals for Children — Chicago recently received funding from the National Institutes of Health (NIH) to extend the Brittle Bones Research Consortium, a study of adults and children with osteogenesis imperfecta (OI), a rare disorder that causes bones to break easily. These individuals have been tracked annually for medical procedures, treatment, and testing – many since 2010.
Four of the 12 centers participating in this multimillion-dollar research project are our locations in Chicago, Illinois; Tampa, Florida; Montreal, Quebec, Canada; and Portland, Oregon, along with medical institutions such as Baylor University, the Kennedy Krieger Institute, and the Hospital for Special Surgery.
“We are enthusiastic about the opportunity to learn more about this rare disorder and share information through research and publications to improve care,” said Peter Smith, M.D., principal investigator at the Chicago Shriners Hospital.